March 27, 2012 – The Department of Health and Human Services is seeking public comment on ethical issues raised by easy availability of large amounts of human genome sequence data.

The Presidential Commission for the Study of Bioethical issues is examining the balancing of privacy and data access, and individual and societal interests. “As a result of the tremendous technology advances that have dramatically reduced the cost of sequencing, the science is at a point where relatively inexpensive, rapid sequencing of whole human genomes appears not only likely, but imminent,” according to the notice, available in a PDF here. “This prospect raises many questions for the scientific, medical, ethics, and patient communities related to how this information can and ought be collected, used and governed.”

Register or login for access to this item and much more

All Information Management content is archived after seven days.

Community members receive:
  • All recent and archived articles
  • Conference offers and updates
  • A full menu of enewsletter options
  • Web seminars, white papers, ebooks

Don't have an account? Register for Free Unlimited Access